I’m nearly six months into this headache, though, if I’m honest there are less ‘spike’ headaches and more mornings when I can sleep at night, or get up in the morning and I’m mostly ok. I think we’ve found the dose of Amitriptyline that works. And based on what I’ve read, I can’t really expect much more. It’s hard to say whether I’m slowly getting better because whatever caused it is…I’m not sure if that’s something clearing through, if that’s even the right word for it.
I can’t really say that I feel better though. I’m still struggling with basic things. Laundry and housework mostly keeps me over the top busy. By the time I’ve cleaned a bit, hoovered and dusted, ran the laundry, folded, put stuff away, I feel like I’m just going to collapse!
Tuesdays right now are the hardest, I guess. I spend most of Tuesday prepping to maybe go to training at LudoSport, with the other half, then, I’m about 50% likely to attend or not. And that’s hard, I guess. I miss training on a full schedule, but, like I said in the “reality is setting in” post, pain makes people tired. And, because I don’t – really – remember them, I’m struggling to motivate myself to attend right now.

Which I guess is a bit rough. Especially, as I’ve just finished editing Run Girl, Run to add in some of the stuff that was requested.
Which brings me to some news.

Living with more than just Status Migrainosus

So, while this blog talks about headaches and Status Migrainosus, I live with other things too. Two years ago, just after I started with LudoSport Bristol, I wrote a book, and sold it to a traditional publisher, who, unfortunately, released it from contract at the beginning of this year. All is not lost though!
I’ve found a home for it, this book, and the final one I was working on, Acts of Change. All three are now with a new press, and I hope to get to announce it very soon.
And I guess I’ll be taking on a fourth project now. I’ve got so many friends around me that have…issues with their health. Complex issues, that people don’t talk about. So, I’m thinking about an anthology.
I mean, I didn’t even know Status Migrainosus was a disorder until I started having the headaches I did. It was, after they ruled out the really *really*serious stuff, the only option that actually made sense was…well, a migraine. My doctor apparently kept suggesting that it was just an ‘unusual’ migraine, but I started researching and these migraines aren’t common. And apparently I’ve had one before – the incidents of bad migraines that I’ve had in the past might actually have been ‘longer than normal, but not this long migraines’. Because, no matter what one of my other GPs say, headaches aren’t supposed to last two weeks. Not migraines anyway.
A lot of what I’ve read about migraines, especially in woman, is that the idea of migraines aren’t longer than 72 hours is not only inaccurate, but can prove to be difficult, and I want to write about that. I don’t get migraines because of my periods, for example, but menstrual migraines are a thing. And can last a week. But, honestly, and evidently, migraines aren’t ‘oh, you have an aura, you get a headache, you need to go lie in the dark for a few days, you get better’.

So, Typing a Blank will be addressing that, and I’m hoping to found a group of health writers that can talk about all of the rare things we have, so that people don’t feel alone. Because honestly, the biggest reality, and one I don’t think I really touched on, is how lonely it’s been for David and I to get through all f this. I’ve had a very few friends that spend time with us, and we support, but really, it’s been insanely lonely. And I don’t want others to feel that way.
Hence, books, this blog. And I genuinely hope it’ll help.

My next post will be about community. Because I do have one. It’s smaller than it used to be, but there are a group of people pulling for me. And I think this just highlights that we all have our own little village, and we should be working with that, not against it.